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How can Tree of Hope help you and your child?

Tree of Hope supports families with children and young people that are living with CFS/ME through campaigns to raise funds for those treatments and therapies that make a difference that are more difficult to access and often costly and simply not available as they are so niche. This include things such as nutrition, or alternatives to traditional physical therapies.

What is Chronic Fatigue Syndrome?

Chronic Fatigue Syndrome (CFS) is a long-term illness with several varying symptoms. The most commonly associated being extreme tiredness. CFS is also well known as Myalgic Encephalomyelitis (ME).

What are the effects of ME/CFS?

As well as feeling extremely tired and unwell, symptoms can include sleep problems, muscle or joint pain, a sore throat, memory problems, flu-like symptoms, a feeling of dizziness or sickness; or a fast or irregular heartbeat.

Things such as over exercising can make symptoms worse and the severity of symptoms can vary daily or change within the course of a single day.

Symptoms of CFS/ME have many similarities to other common illnesses, though a diagnosis of CFS/ME is more likely when these symptoms persist after they would usually be expected to have got better on their own.

With many unknowns about the condition it can often take a long time to reach a diagnosis, with many debates as to whether the condition exists and is physical, or psychological. Over time there have been different approaches to treating the condition with approaches as varied as cognitive behavioural therapy (CBT) with a psychological approach, through to diet, nutrition and structured exercise programmes where a more physical diagnosis and approach it taken.

With the trigger factors that cause the onset of CFS/ME being as varied as the symptoms, it has, and continues to be an area in need of further research, and often a topic of debate within many clinical and research institutions.

Another development with the condition is that a cause of the symptoms is that of Craniocervical obstructions in patients presenting with CFS/ME. There is ground breaking research and treatments involving spinal fusion being trialled with positive results.

For further information:

https://www.actionforme.org.uk/

If your child, or you know of a child that has a diagnosis of CFS/ME and they are struggling to access those services that might support health improvement, then please do get in touch to see if a Tree of Hope campaign could be right for you.

 

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