Rare Diseases
What are rare diseases?
99% of genetic conditions are classed as rare*. Often rare diseases are chronic and life-threatening.
About
Rare diseases include rare cancers such as childhood cancers and some other well-known conditions, such as Cystic Fibrosis, Huntington’s disease, Battens Disease, Angelman Syndrome, and chromosomal disorders.
How we can help children with rare diseases
Treatment options for rare diseases are vast. Outside of NHS prescribed medications, children can benefit from additional therapies, adaptations and equipment to help them achieve everything they possibly can.
References:
*Inferred from OMIM.org and orpha.net databases. Genetic conditions refer to single gene disorders and chromosomal abnormalities.
https://www.raredisease.org.uk/what-is-a-rare-disease/
Fundraising with Tree of Hope
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Our Impact
With over 30 years’ experience, we have helped thousands of families and have grown to meet increasing demand. Read our latest impact report to be inspired and find out more about our journey.
1,958
Children helped
£1.2 million
Raised in the last year
