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Hope for Ella: Fundraising for Private Therapy After a Rare Genetic Diagnosis

Posted 16 days ago...

One-year-old Ella has had a complex start in life, with genetic testing revealing a very rare genetic condition called CSDE1, so her paretnts have turned to Tree of Hope to fundraise for private therapy

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Harry'S Helping Hand Newsletter Article Listing

Newsletter

Giving Harry a Helping Hand – The Final Fundraising Push!

24 Aug 2026
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Fundraising News

Fundraiser for Sittingbourne three-year-old who wasn’t expected to survive birth

11 Aug 2026
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Fundraising News

Under-10s Yalding and Laddingford football team take on head shave for five-year-old with rare genetic condition

14 Jul 2026
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Fundraising News

Accessible community festival ‘Edfest’ to take place in August in Chingford

14 Jul 2026
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Fundraising News

Eccles Dad taking part in Fight Night to help raise funds for school friend with cerebral palsy

02 Jul 2026
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Fundraising News

Brentwood father of two takes on gruelling challenges for Liverpool teenager he’s never met

02 Jul 2026
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Fundraising News

Five-year-old girl’s scooter challenge for friend with genetic condition SMA1

22 Jun 2026
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Fundraising News

Three Peaks Challenge for five-year-old with genetic condition SMA1

17 Jun 2026
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Fundraising News

Book published by Tiptree author to help raise funds for local boy with multiple disabilities

27 May 2026
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Fundraising News

Pub ‘Bike Night’ to raise funds for five-year-old with genetic condition SMA1

27 May 2026
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Fundraising News

Carlisle friends taking on Hadrian’s Wall hike to help seven-year-old with cerebral palsy

26 May 2026
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Fundraising News

Golf event this month for local boy with multiple disabilities

21 May 2026

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