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SWAN, Syndrome Without a Name, is not a diagnosis but is a term used for children and adults suffering from symptoms of an undiagnosed condition.
Around 6000 children in the UK are born with an undiagnosed condition and are likely to remain undiagnosed. Though, most are undergoing genetic testing and research studies to help them find out and gain more of an understanding about themselves.
Children with learning and physical disabilities and complex medical issues often need specialist care, some which may not be available through the UK healthcare system.
Tree of Hope can support you to raise funds for your child’s specialist medical care. This could include equipment, physiotherapy, home adaptations, treatment and more, that will transform your child’s life.
Contact Georgie in our Family Support Team now on 01892 535525 to discuss your options and talk about starting your fundraising campaign with Tree of Hope.
Every SWAN child is different, meaning each child will have different symptoms and be affected differently. It is possible for them to have learning and/or physical disabilities and have complex medical issues. Due to this many children affected by SWAN are sometimes described as having global developmental delay or a failure to thrive.
It is hard for parents and families when a child or adult’s condition is undiagnosed as it can be harder to receive answers on why their child is ill. However, there are a few reasons why…