Oliver is 6 years old and has Conradi-Hünermann-Happle Syndrome. This syndrome is usually fatal in boys and Oliver is one around 5 known boys in the world to survive with the condition. Oliver’s 20 week ultrasound scan showed that his brain might not be forming properly and subsequent scans and MRI’s have shown Oliver to have multiple brain abnormalities. As a result, Oliver has profound learning and developmental delays, epilepsy, visual impairment, eating and swallowing difficulties. He was also born with a collodion membrane and ichthyosis, patella, femur and hip abnormalities and has had repeated chest infections and pneumonia.
Oliver has always been a happy, cheeky boy despite all the trials he has been through. He attends weekly physiotherapy sessions at Kids Physio Works and has shown amazing progress with his head and trunk control since starting here. No NHS funding is available to help with these sessions so we have to fund these ourselves which costs around £4000 a year! In order to continue these physiotherapy sessions we need your help and kind donations!
We will keep you updated on Oliver’s progress with his physiotherapy sessions.
Thank you so much!
Oliver, Katie and Dan (Mummy and Daddy)
7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.
If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects. If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objectives, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.
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