My name is Emma and I am almost 6 years old.
I was born on 22 of May 2016 and after a few weeks I was diagnosticated with a rare genetic disease called Incotinentia Pigmenti. When I was 6 months old my parents noticed that I am not able to sit by my own, crawl or keep my balance. My illness is affecting my nervous system so I am facing Gross motor difficulties and Development impairment, these means that I am not able to walk, crawl, sit or stand independently. I spend my last 5 years from a therapist to another looking for a change, even a small one, but lately the progress is quite low due to the stiffness in my arms and legs which it`s stopping me to learn new movements.
I love going to school, I made a lot of new friends in there and everyone is happy to see me. I like books and numbers and enjoy playing with my little brother Yanis, I can not wait to run and play outside with him.
My parents found out about the SPML intervention which will eliminate that stiffness and enable me to move more independently and maybe even walk. After the intervention I will need to work hard in therapies in order to gain that independence that I am dreaming of. This is why I need all these money to pay for the surgery and the therapies after.
So please, help me in my journey I promise I will share my first steps with you and even the smallest contribution will means a lot to me.
Thank you for reading my story,
Emma Elena Timofte
7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.
If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects. If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objectives, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.
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