Helping Morgan Access a Better Future

Morgan has had a difficult start to life. He was born with both arms broken during delivery, and doctors initially suspected brittle bone disease. Although this was later ruled out, Morgan continues to have significant physical difficulties and has an undiagnosed neuromuscular condition.

Morgan has hypotonia (low muscle tone), hypermobility and global developmental delay, alongside learning difficulties. He has very limited strength in his upper body, particularly his neck, shoulders and arms. He struggles to hold his head up, maintain a stable sitting position and support his own weight. He cannot crawl, stand or walk and relies heavily on me for assistance with everyday activities and personal care.

As his mum, it is heartbreaking knowing how much he wants to explore the world but how many barriers his disabilities create. Even simple things like going out as a family can be challenging because he needs specialist equipment to keep him comfortable, supported and safe.

Unfortunately, the standard equipment available through the NHS has not adequately met Morgan's needs. His current buggy is heavy and difficult to manage, and we are desperately trying to secure a more suitable specialist buggy that provides the correct postural support, including head support, hip laterals and a pommel.

We are also fundraising for a specialist car seat because Morgan struggles to maintain a safe and comfortable position in a standard car seat. In addition, we are trying to raise money towards ongoing private physiotherapy and hydrotherapy, which are important in helping maintain and improve his strength, mobility and development.

I am a single mum of two, raising Morgan and his older sister, Sophia, following the loss of their dad/stepfather Jordan, in November 2024. We have faced a lot as a family, and I am doing everything I can to make sure Morgan gets the support and opportunities he deserves.

We have explored NHS provision, approached numerous charities and tried different fundraising ideas, but securing the right equipment and ongoing support has been incredibly difficult. The costs are far beyond what I can manage alone.

I am applying for support because I want Morgan to experience childhood as fully as possible. The right specialist buggy would make an enormous difference to his comfort, positioning, mobility and ability to enjoy everyday family activities. Combined with appropriate car seating and continued therapy, it would help give him the best possible opportunities to develop and reach his potential.

Every bit of support would mean so much to our family and help give Morgan the opportunities, comfort and quality of life he deserves.

7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.

If we raise insufficient funds, or surplus funds, they will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objectives. If, in those circumstances, we are unable to use all or part of the funds for the benefit of our child, any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.