Therapy Fundraising for Alexander San

Thank you for visiting Alexander Jamie (AJ) San’s page. AJ is a happy, fun, loving four-year-old boy diagnosed with Global Development Delay (GDD) and Epilepsy. He enjoys being around his peers, reading books and being sung nursery rhymes too. ‘The Wheels on the Bus’ being his favourite.We are looking to support AJ with further Intensive therapy sessions to help him become more independent and hopefully being able to take his first steps:Swim Lab International Therapy with Trexo Plus in Lanzarote (November 2023) -BOOKED!!!

Swim Lab International Therapy in Lanzarote (May 2024) -BOOKED!!!AJ’s story so far…With a ‘textbook’ pregnancy, AJ was born at 38 weeks weighing 5lb 5oz, naturally without pain relief or any medical intervention. It was picked up by the health visitor at his 10-12 month review his developmental delays. AJ wasn’t meeting his milestones e.g. He was unable to sit up at six months; he could not roll independently, and he lacked fine motor skills too. Since AJ’s GDD diagnosis, AJ has been under the care of many healthcare professionals with numerous hospital appointments and therapy sessions. AJ’s father Fong has put his career on hold to be AJ’s carer full time juggling AJ’s busy schedule.AJ started to have head drop seizures (Atonic seizures) back in August 2021 and was later diagnosed with epilepsy in January 2022. He currently medicates on Keppra (levetiracetam) and Topamax (topiramate) to help reduce his seizures. Up to 70% of people with epilepsy could have their seizures controlled with anti-epileptic drugs (AEDs). For some people who continue to have seizures, the ketogenic diet may help. We are currently waiting to start AJ on a Ketogenic diet.At present AJ’s developmental delay gap is moving further from his peers. AJ continuously works hard on all his therapies. He is currently non-mobile and non-verbal. AJ has a Rifton Pacer but not managed to use it as a walking aid.We do not know what the future holds for AJ’s developmental journey, but we would like to ensure we do our very best to help him progress and continue to thrive. With your help we hope to be able to continue to get AJ the intensive therapies he needs.Thank you all for your support and help!AJ and family

7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.

If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects.  If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objectives, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.