Jacobs Challenge

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Hello, my name is Jacob Kennedy and I am 9 years old, and I have two brothers my twin brother Luke and my older brother Daniel, I was born 8 weeks premature and had to spend 3 weeks in the special care baby unit before I could go home. I was diagnosed with Cerebral Palsy which mainly affects my legs but also my hands and arms. This means that I can’t walk without my kaye-walker.

What does this mean?........ Unfortunately I am unable to walk independently and I have difficulty with all other fine motor skills which include, writing, eating and getting myself dressed etc. I also find it very difficult sitting and I need a special chair at home and at school which helps supports me in all of the right places. I also use a wheelchair I need help on a daily basis with nearly everything I do. At my school I have a team of special teachers who give me one-to-one assistance so that I can join in with the rest of the class. I have to have daily physiotherapy to stop my muscles getting stiffer; this is done at school and also at home with my mummy & daddy. I sometimes find this hard and frustrating and I wish I didn’t have to do it and could go and play like everyone else. In October 2013 I went to Frenchay hospital in Bristol for an operation called Selective Dorsal Rhizotomy (SDR). we are trying to raise £7200 for my on going physiotherapy, after the SDR operation as I will need 4 to 5 sessions a week for the forseeable future. I would greatly appreciate any help you are able to give. - My sitting and standing postures will improve - Walking balance will improve - Ability to perform daily living skills will improve - My walking will improve significantly - My level of comfort will improve

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