During my pregnancy, our daughter, Seren, was diagnosed with Ventriculomegaly (excess fluid in the ventricles of the brain). This was picked up at the 20 week scan and monitored throughout by further ultrasound and MRI scans. Following her birth she was scanned and the fluid was no longer there. The relief to know that the fluid was gone was overwhelming. However, she was born by forceps delivery and her head was twisted 180 degrees as she was facing up rather than down.
Over the past 6 months, Seren, has been treated by a chiropractor for Torticollis (stiffening of the neck due to forceps delivery), which has helped improve the movement in her neck. As a result of the condition, Seren has been unable to move her head correctly and now has a misshapen skull, which may or may not be affecting her motor skills such as ability to sit up unaided, crawling, walking etc. As her skull grows, she will have more difficulty in turning her head and the malformation will only get worse, unless we intervene.
We have been in touch with Technology in Motion who specialise in Plagiocephaly (the flattening and malformation of the skull). This company treat the condition with the use of a corrective helmet. The result of the initial consultation is that Seren's condition is in the "severe" category, which puts her at greater risk of developmental issues.
The NHS will NOT pay for this helmet as they believe that the condition is purely cosmetic.
Therefore we must raise £1,950 to pay for the continuing treatment, and the helmet, to give Seren the best chance possible.
As you can appreciate, this is a huge sum of money for the average person, on maternity leave, and we would appeal to you all for your spare change! It's amazing how much cash you can find in your sofa that you never knew was there! No matter how small, any donations would be forever appreciated.
Love to all
Poppy, Andy & Seren xx
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