Ok so as many of you know Kyan is progressing well, slow but getting there his own way! The reason he may not being doing as well as many of the other children that have had sdr is that he now requires a further operation on his legs to release the tightness the awful spasticity has left him with! We are hoping to take Kyan to America to have this as UK are simply not agreeing with this opinion but insisting we accept Kyan has reached his full potential!! Well if anybody knows me then you can imagine how that has left me feeling! We will show them and we will have this op in America! Operation and stay in America is going to cost just over £20.000 so I am asking all my beloved friends and family to share away and donate however small amount because I know my son can do the it's just a shame the price is beyond me right now! X x
My name is Kyan and I'm 3 years old, I was born with a condition called cerebral palsy, although over the last year now,I'm getting quite fast with my k walker it would be great to walk,and even run like the rest of my class mates. My mum has researched an operation called SDR which could actually do this, yes I know it sounds to good to be true, but it is true! The only thing holding us back is the fact that this operation is no longer on The NHS and costs around £60000 so with the help of family friends and generous people like yourselves hopefully I will walk, run and even kick a football with my brother.
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