Ruby and sebes wish to breathe

As many of you know ruby 9 and sebe 4 both have cystic fibrosis. A large amount of their lives are spent in Birmingham childrens hospital and when we are home our days are a battle consistent of hours of physio and hundreds of pills. A few years back a drug called 'orkambi' was discovered to treat the root cause of cf, stabilising lung function and drastically reducing hospital admissions. A chance of a 'normal' life! Only problem is it is not funded on the NHS here in England. We have been given an opportunity to buy this ourselves at a cost of £24,000 per year per child. So to fund ruby and sebe for one year the cost is £48,000. We have to raise £10,000 initially to fund at least a few months which will hopefully give us time to think of how we are going to pull this off. We are aware this is a massive amount of money and we are exploring every Avenue we can to raise the money. So here's our starting point ....

Request Removal

Request a callback

Fields marked with an * are required

Fields marked with an * are required