Support for Rosalie
We are raising money for a safe and accessible home for Rosalie.
Rosalie is a typical 5 year old in many ways. She's smart. She's funny. She loves people. She loves animals and she loves music (especially the Wiggles). She loves exploring the world. She laughs a lot. She gets grumpy when she is hungry (like her parents).
Rosalie has Rett Syndrome and this means life for her isn't like every other 5 year old. Rett Syndrome is a genetic neurological condition that effects brain development and means that Rosalie is reliant on help with all aspects of life. She understands much of what is said to her but can't communicate verbally. She is currently learning to use an eye gaze computer to help her learn to communicate but this is a very slow process. Physically, she is unable to walk or stand unaided and has limited use of her hands. Rosalie has a PEG feeding tube as she can't drink liquids safely. She has other health issues such as epilepsy and experiences several seizures a day, though we are trying to get these under control.
Her disability has a profound impact on her life and restricts her opportunities and life experiences. As Rosalie gets bigger it is becoming harder to physically care for her and to address this we are having adaptations done to our house to make it wheelchair accessible. We have been able to access funding from the council but this will only stretch so far. Any money that we raise will go towards making the house more accessible for Rosalie and for providing specialist and sensory equipment that will support and improve her physical and mental health and wellbeing.
Our vision is to create a safe haven for her where we can care for her easily and she can feel safe and content. Your donations will help us make this a reality.
Thank you for all of your support.
By using Tree of Hope we are able to utilise Gift Aid. 7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.
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