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Please Help Pippa

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Please Help Pippa

When Pippa was born in 2016, 90% of the skin on her hands and feet were missing. Her parents, were told she had an incurable disease, a rare skin condition called Epidermolysis Bullosa (EB).

Pippa’s Daily Battle

Every day, Pippa undergoes a full dressing change which can last up to three hours. All her blisters have to be lanced and drained. Her dry skin and scabs have to be removed and her skin smothered in different healing balms. Pippa gets 60-100 blisters a day all over her body, including inside her mouth and ears. Daily life is very painful for Pippa as her skin can blister and tear at the slightest touch, often leading to skin infections. Her clothes have to be specially made and she may need a wheelchair to help her move around as she grows.

To cope with the pain, Pippa takes daily morphine, 6 hourly Paracetamol and on bad days she takes sedatives. Pippa is very prone to serious skin infections which need to be detected and treated quickly.

How Tree of Hope helped

With support from Tree of Hope, Pippa’s family have raised almost £50,000.

With this money, they have been able to extend their house with a one room extension with specialist bathing and changing facilities, including installing a special new Microsilk bath for Pippa which will help with the blisters and will massively reduce Pippa’s pain and risk of infection. They have also installed air conditioning to help Pippa maintain a cool temperature and changed the flooring throughout the house to a completely smooth resin floor which reduces friction.

If you would like support in fundraising for your child’s medical contact Georgie or Lee in our Family Support Team on 01892 535525 or via families@treeofhope.org.uk.

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