Samuel is a bright and happy 6 year old, with a great sense of humour and a love for people. He lives in Angmering, West Sussex with his parents, baby sister Anabelle and Alfie the dog.
Samuel was born in June 2008 at Worthing Hospital. He was 7 weeks early and spent the first 2 weeks of his life in the Special Care Baby Unit. At some point in late pregnancy, Samuel suffered damage to his brain and was later diagnosed with Quadriplegic Cerebral Palsy (which means the muscles of all 4 limbs are affected). He is also treated for seizures and has Cerebral Visual Impairment.
Samuel works really hard with his therapists and teachers and is making good progress, but the tightness he experiences in his limbs and low tone in his trunk make it difficult for him to support himself and to move his limbs unaided. For Samuel, this means that he is unable to sit-up, crawl or walk independently. Mouth closure and producing the words that he wants to say are also a challenge.
With the care, support and hard work of his mum and dad, Samuel lives life to the full – trampolining, horse riding, swimming and meeting with friends and family.
Assistance from the NHS and Social Services has already helped make major changes to their home, including a lift, flush floor shower and ramped access. Equipment and seating have also been provided to help Samuel with the everyday activities of daily life. However, there are still many needs that have to be organised and paid for privately.
As Samuel is growing up his needs are becoming more complex and, quite simply, he’s getting bigger and heavier. He and his family now have to consider that he will always use a wheelchair, require hoisting and need help with caring for himself.
Emotionally, this is a huge thing for his parents to face, but it is also financially difficult. Samuel will require more adaptations to his home and additional, very specialist wheelchairs and equipment. He will continue to get some help with funding, but his family need to raise additional money to pay for these themselves.
So this is how we hope to help Samuel and his family:
Over the next 5 years, we aim to raise £50,000 for Samuel through the registered charity, Tree of Hope. This money will be used to pay the top-up funding for his wheelchairs; for specialist seating and equipment; adaptations to his home and any specialist treatment and therapy that is not funded by the NHS or Social Services.
Samuel is an inspiration and a delight to be with and deserves every opportunity to maximise his function, independence and enjoyment of life. The money raised is vital to meeting Samuel’s equipment and therapy needs and his parents will be forever grateful for your help.
Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.
All the money raised will be held by Tree of Hope for Samuel. Should we exceed the target amount (or if they cannot be used for any other reason) the funds raised will go to the general funds of Tree of Hope to assist other sick children.