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Rett UK

Rett UK is the only UK charity that provides professional support to people living with Rett syndrome across the UK. We were founded in 1985 round a kitchen table by Yvonne Milne MBE. Since then we have grown to be the leading provider of information to not only families but also medical professionals new to the world of Rett syndrome.


Our aims are to:

  • Provide professional family-support services, activities and events at a local, regional and national level
  • Educate health, social care and education professionals about Rett syndrome to enable quicker diagnosis and improved standards of care throughout the UK
  • Advocate for people with Rett syndrome to be given the support and resources needed to be active communicators
  • Promote, support and encourage research into new therapies and treatments for Rett syndrome


Our hope is that everyone with Rett syndrome is given every possible opportunity to achieve their individual potential so that they may live their life to the full.


To find out more, please visit the Rett UK website here

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