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Dravet Syndrome UK

Dravet Syndrome is a rare, life-limiting and life-long neurological condition, occurring in around 1 in every 15,000 births in the UK. The condition causes epilepsy (severe, treatment-resistant seizures), learning disability and a spectrum of associated conditions, which may include autism, attention-deficit hyperactivity disorder (ADHD), challenging behaviour, and difficulties with speech, mobility, feeding and sleep.

Dravet Syndrome UK is the only UK charity dedicated to improving the lives of those affected by Dravet Syndrome. We work to bring hope to families living with Dravet Syndrome through;

  • Supporting families affected by Dravet Syndrome emotionally, practically and financially.
  • Raising awareness and understanding of Dravet Syndrome among medical professionals.
  • Funding medical research to increase understanding of Dravet Syndrome, improve its management and work towards better outcomes for all those affected.

For more information about Dravet Syndrome, please feel free to visit their website, email the team at or alternatively call them on 01246 912421.

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