Olivia Lugani

Tree of Hope is helping to raise funds for Olivia's medical needs and essential pieces of equipment and home adaptations. For example, a wheelchair, private physical therapy, physiotherapy equipment, computer technology, and several home adaptations; all of which will offer her the best quality of life.  We have a long journey ahead and every contribution will make a difference. 

Olivia was clinically diagnosed in January 2013 with an extremely rare genetic condition called Goldblatt Syndrome (aka Odontochondrodysplasia), a form of Dwarfism. After thorough investigations by American, Swiss, French and British doctors, they still not been able to diagnose her molecularly.  Only 18 other children world-wide have been diagnosed with Goldblatt Syndrome. 

Olivia is 5yrs old and suffers from muscular and joint pain and is unable to walk independently. Due to her condition, Olivia has a severely curved spine and neck (C1/C2) instability. To ensure her safety, doctors are trying to find a solution to stabilise Olivia's neck, while weighing the pros/cons of pursuing an invasive procedure on a small-boned body.  Currently, our next steps are uncertain, as they are unsure if she can withstand surgery. We must entrust her doctors to try to offer us the best long-term solution for Olivia.  

We live each day, day-by-day. Due to the rareness of Goldblatt Syndrome, Olivia's future is uncertain. We know it is a life-limiting condition, therefore, it is imperative that we offer Olivia all the support she needs.  

The disease does not allow Olivia’s muscle strength to develop, and her severe spinal curvature and weight of her head on her 67cm sized body, cause her to be unbalanced, therefore she cannot walk and has a lot of pain everyday.  

Currently, we are seeking funding to adapt our home to allow Olivia access with her wheelchair and offer her more independence. By installing an elevator and toilet and shower room she will have the required facilities for her long-term needs. 

As Olivia's condition is so rare, the burden of care must fall on parents to pay for expensive, privately-funded, bespoke-made medical equipment, treatment, and costly adaptations. 

Please DONATE today to support Olivia's needs.

We have compiled a list of essential pieces of equipment to help Olivia reach her full potential, just like any other little girl. By installing an elevator, she will not have pain crawling up the stairs and a bespoke toilet and shower room will give her the required facilities for her long-term needs. Your donation to this campaign will solely benefit Olivia, no one else. She would greatly appreciate your contributions towards this essential equipment:  
- Respiratory equipment: £1,000
-Physiotherapy equipment: £4,700
- Wheelchair platform hoist: £5,000

- Specially-made tricycle: £1,900

PLEASE REGISTER on Olivia's website www.olivialugani.com to follow her progress. Befriend her on Instagram (@sparkling_tiaras), twitter (@olivialugani) and Facebook (Olivia Lugani).

Thank you for your continued love and support on this life-long journey. 

GBP Bank transfers:
Account Name: Tree of Hope
Bank: Metro Bank
Sort code: 23-05-80
Account: 21862665
Reference ‘Olivia Lugani'

Bank Transfers for International Donors:

ACCOUNT NUMBER: 401014 31498045
ADDRESS: Salford House, Salford Terrace, 19-21 Quarry Hill Road, Tonbridge, Kent, TN9 2RN
IBAN: GB27MIDL40101431498045
BANK: Metro Bank
BANK ADDRESS: One Southampton Row, London, WC1 5HA

GBP Cheques can be sent directly to Tree of Hope for the benefit of OLIVIA LUGANI. We will list your donation as an 'offline donation'. Postal address: Salford House, Salford Terrace, 19-21 Quarry Hill Road, Tonbridge TN9 2RN

NB: Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to Olivia

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