Tree of Hope is helping to raise funds for Olivia's medical needs and essential pieces of equipment and home adaptations. For example, a wheelchair, private physical therapy, physiotherapy equipment, computer technology, and several home adaptations; all of which will offer her the best quality of life. We have a long journey ahead and every contribution will make a difference.
Olivia was clinically diagnosed in January 2013 with an extremely rare genetic condition called Goldblatt Syndrome (aka Odontochondrodysplasia), a form of Dwarfism. After thorough investigations by American, Swiss, French and British doctors, they still not been able to diagnose her molecularly. Only 18 other children world-wide have been diagnosed with Goldblatt Syndrome.
The disease does not allow Olivia’s muscle strength to develop, and her severe spinal curvature and weight of her head on her 67cm sized body, cause her to be unbalanced, therefore she cannot walk and has a lot of pain everyday.
- Specially-made tricycle: £1,900
Thank you for your continued love and support on this life-long journey.
GBP Bank transfers:
Account Name: Tree of Hope
Bank: Metro Bank
Sort code: 23-05-80
Reference ‘Olivia Lugani'
Bank Transfers for International Donors:
ACCOUNT NUMBER: 401014 31498045
ACCOUNT HOLDER: Tree Of Hope
ADDRESS: Salford House, Salford Terrace, 19-21 Quarry Hill Road, Tonbridge, Kent, TN9 2RN
SWIFT/BIC CODE: MIDLGB22
BANK: Metro Bank
BANK ADDRESS: One Southampton Row, London, WC1 5HA
GBP Cheques can be sent directly to Tree of Hope for the benefit of OLIVIA LUGANI. We will list your donation as an 'offline donation'. Postal address: Salford House, Salford Terrace, 19-21 Quarry Hill Road, Tonbridge TN9 2RN
NB: Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to Olivia