Olivia Lugani - "A girl in a Billion"
Tree of Hope Charity is helping to raise funds for Olivia's medical needs and essential equipment. We are pursuing a time-sensitive, costly treatment plan from consultants at Necker Hospital in France and The Paley Institute in Florida, USA, which must be funded out of pocket. Olivia also needs self-funded physiotherapy equipment, a specially-designed trike to manoeuvre around the house, a vehicle hoist, and several bathroom adaptations; all of which will offer her the best quality of life. We have a difficult journey ahead and all of your contributions will make a difference.
Olivia was clinically diagnosed in January 2013 with an extremely rare genetic form of dwarfism called Goldblatt Syndrome (aka Odontochondrodysplasia/ Spondylometaphyseal dysplasia). After thorough investigations by American, Swiss, French and British doctors, they still not been able to diagnose her molecularly. Only 18 other children have been diagnosed with Goldblatt Syndrome world-wide.
The disease does not allow Olivia’s muscle strength to develop, and her severe spinal curvature and weight of her head on her 67cm sized body, cause her to be unbalanced, therefore she cannot walk and suffers from pain everyday.
- Specially-made tricycle: £1,900
Thank you for your continued love and support on our journey.
GBP Bank transfers:
Account Name: Tree of Hope
Bank: Metro Bank
Sort code: 23-05-80
Reference ‘Olivia Lugani'
Bank Transfers for International Donors:
ACCOUNT NUMBER: 401014 31498045
ACCOUNT HOLDER: Tree Of Hope
ADDRESS: Salford House, Salford Terrace, 19-21 Quarry Hill Road, Tonbridge, Kent, TN9 2RN
SWIFT/BIC CODE: MIDLGB22
BANK: Metro Bank
BANK ADDRESS: One Southampton Row, London, WC1 5HA
GBP Cheques can be sent directly to Tree of Hope for the benefit of OLIVIA LUGANI. We will list your donation as an 'offline donation'. Postal address: Salford House, Salford Terrace, 19-21 Quarry Hill Road, Tonbridge TN9 2RN
NB: Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to Olivia