Oceans treatment for brachcephaly
My daughter ocean was born in Surrey on the 21st March 21 weighing 7lb.6oz after 1 day in hospital we returned home and began the beautiful journey of mother hood.
All was going well until about 2 months oceans nanny kept commenting on her head shape and how flat the back of her head is. After a few weeks I decided that something definitely didn’t look right and so we went to the GP who ensured it was normal and not to worry. However, after some convincing, we were referred to a specialist at the local hospital. Again, she didn’t seem too phased and just said the hair will go over it but did send us to have some physo to help get her head shape to go back to normal.
After a few sessions the physio helped with the exercises to help her head but I was informed that nothing could be done about bulging of the forehead and the severe flattering to the back of her head and as it was purely cosmetic, the NHS won’t do anything further.
So I decided to do some further research and found out that In some severe cases, which oceans falls into this category with a head score of 2.6 ,(anything above 2 is classed as severe and will not rectify on its own) can lead to ear misalignment, as well as poor eye sight, jaw misplacement and not to mention the visual aspects of such noticeable asymmetry.
To me and many other parents out there this is not a cosmetic problem at all and can lead to long term problems if not rectified. I then went and visited a specialist at Technology In Motion who did a 3D scan and confirmed that ocean has serve brachcephaly and would there for be primed candidates to suffer from the above medical conditions.
Therefore, the only way I can help my little girl is to invest in a cranial helmet and sadly this is an expensive treatment.
The cranial helmet needs to be worn for 23 hours a day and due to the severe nature of my little girls head shape she will need to wear this for 4-8months.
Aside from hoping to raise the funds for the treatment I feel a duty to raise awareness of this disfigurement so that in the future other parents can get help advised and support from the NHS and so that more people are aware of this conditions.
We are grateful to everyone for their donations via Tree of Hope to help get Ocean her helmet and to also raise awareness of this condition.
Thank you for all your love and support
Megan and ocean X
7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.
If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects. If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objectives, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.