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Nida's Fund

Nida's story

 Nida was born in February 2007,14 weeks before her due date weighing only 830 grams. She spent the first 10 weeks of her life in the Special Care Baby Unit before she could come home and has had to climb mountains since the moment she was born.

She was diagnosed with bilateral cystic periventricular leucomalacia (PVL), damage to the brain tissues when she was only three weeks old. As a result Nida has Quadriplegic Cerebral Palsy (CP),   affecting the whole body.  Nida has very high muscle tone (tightness) in her limbs, particularly her legs are very severely affected. Her hips have started to dislocate due to spasticity (tightness) and due to inability to stand or walk unaided.

She needs daily stretches, intensive physio therapy and occupational therapy input to stop her limbs from getting deformed (preventing contractures), trying to normalise her muscle tone and also improving her weak trunk muscles. Her muscle tone (tightness) increases massively under effort. Her speech is also affected and she needs ongoing speech and language therapy input to enable Nida to express her feelings and needs, communicate with others etc

Nida is currently unable to crawl, stand or walk independently and struggles with things that we and others take for granted. She also have difficulty sitting and changing positions without help and support;

Nida wears AFO's (ankle/foot/calf orthosis) all day and uses a special needs buggy/wheelchair for outside.

 Despite her disability, Nida is an amazing child. She is a bright, happy girl, who has a desire to learn, absorb and take part in new activities whether

physical or mental, however she  gets very frustrated when her body doesn't allow her to access her environment like her fellow 5 year old friends do.

Therefore this site has been set up with the aim of raising funds to help Nida afford specialist therapies that will make her life easier and more comfortable.

These therapies include conductive education, courses of therapy at the Bobath Centre for people with cerebral palsy in London ( www.bobath.org.uk),  Adeli Suit.

These therapies will help stimulate and encourage Nida's development, increase her self-esteem and help her gain more independence i.e. learn to walk. Also these therapies will help Nida avoid discomfort, contractures on her limbs, arthritis and hip operations (a very complicated operation), which are very common for children with cerebral palsy.

As you can imagine these therapies are very expensive so hopefully this fund will enable Nida to access these amazing therapies so she can have a better quality of life and also would enable Nida to qualify for a ground braking operation called Selective Dorsal Rhizotomy, which would help our brave little girl to overcome the effects of her cerebral palsy and enable her to walk so she is not wheelchair bound.

We would be very grateful for any donation no matter how small and if you could also share Nida`s page amongst friends and family, it would mean the world to us.

Please help unlock Nida`s potential!

Thank you very much for your support

Person to contact: Nida`s Parents

Email:apireva2003@yahoo.co.uk

Mob: 07853690667

Thank you very much for visiting Nida's page x

 

 

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