Frankie's fight for life
This has caused my bones to become thickened. I have regular blood transfusions,seizers on a daily basis, a tracheostomy, restrictive lung disease, fractures, hearing loss and vision problems. I'm also dependent on oxygen.
I cannot sit up or walk. I also have severe developmental delay. I am medicated on a daily basis, via my NG tube. I have nebulisers, physiotherapy, regular hospital appointments and appointments at home.
I require around the clock care and both my parents are trained in all my special needs. I also have to have nurses to look after me at night time as I can't be left on my own.
So I'm asking for everyone's help to raise funds for Tree of Hope to help me.