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“My son Nick has an extremely rare immune deficiency which nearly killed him when he was aged two. Then in 1996 infection destroyed his bones and put him in a wheelchair. He was so sick and was eventually referred to NIH in Washington USA who found a IGF receptor mutation, so rare that there were only 5 families in the world known with the condition.

After months of treatment he walked again, infection controlled. But in 2000 Nick developed another infection, aggressive and life threatening, so back to NIH for diagnosis and treatment again. They made him better but needed to see him monthly.

I was in despair. He needed to travel for treatment. Only at NIH had they made him better when otherwise no future and I had no money for flights.

Then The Tree of Hope Children’s Charity came to our aid. I requested help and they responded immediately. They made Nicholas’s travel possible.

Without their help he would have died. The Tree of Hope Children’s Charity did so much for us, more than I could possibly have hoped. They were all so kind, and helpful, and fast when speed essential.

That was 11 years ago and now Nick is grown up, well, and infections are controlled with tablets.”

Samantha his mother

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