Mia Mays Movement
Mia was born on 31st July 2014 and as I write this today she will nearly be 3 years old, Mia was born through a completely normal pregnancy and at about 10 months old was diagnosed with a severe visual impairment. (Blind) at first this was though to be her only condition and although she would be behind on her development she would eventually get to where children would be of her age just at her own pace Unfortunately this is not the case and after a number of MRI scans at Great Ormond Street Mia's brain is not developing as it should be and as i write this today Mia at the age of 3 cant hold her body weight sitting up un supported or crawl or walk. However Mia is slowly getting stronger and starting to weight bare on her legs but this will not improve unless she gets the Physio and support she needs. She also has one of her hips that is slowly moving out of place due to the muscle not being built up from her walking. This combined with her not also being able to talk and getting bigger all the time is starting to become a real challenge for us as a family.
Now this is where we are requesting your help and support, NHS Physiotherapy is incredibly limited so much so we get maybe 3 blocks a year if that and this will not fulfil Mia's dream to be able to move. I had taken out private medical care for Mia to fund her private physio and hydro however as they are linking her condition to Genetics they will not cover anything for her, So that leaves us to have to pay for Mia to have private Physio and Hydro out of our own pockets which is not cheap nor is it local so we need help in raising money in order to have this much needed therapy for her. So we would welcome any donations, fundraising or events people want to run in order for us to be able to help support Mia on her journey to fulfil her dreams of being able to walk and be on her own feet like any child wants to be of this age. and any parent of a child of this age wants.
Funding from Mias campaign will also assist with us getting a trained assitance dog from Supporting Paws thanks to Tree of hope. Supporting Paws provide highly trained assistance dogs which help to encourage and allow children to fully integrate into the community whilst also providing sensory and safety interventions which help the child to regulate behaviour and anxieties. This will help Mia massively in new surrondings to give her that comfort factor also
Mia has now been accepted to have a dog and placed on the waiting lis and we also need additional support and funding in order to get Mia one of the dogs so any additional support and fundraising will be greatly appreciated.
We all love Mia very much and one of my personal goals and things i dream of seeing is her one day being able to walk out as a mascot at my football club Maidstone United one day as well as be able to move around as a normal child. This money could help change Mia's life forever and you really would be helping to give Mia what she wants and needs.
Thank you for reading this story and we truly thank you for any donations you make as it will mean the world to Mia in the long run
Also if you want to read any of my previous Blogs that give more insight feel free to find them here