Help Luis Walker to live longer

Thanks for taking the time to visit Luis' JustGiving page. Luis is a kind, loving 9 year old boy who has cystic fibrosis (CF). There is a drug called Orkambi that could help to slow the decline in his health which is inevitable with CF. It could give him a longer, better life but NHS doesn’t fund it because it’s too expensive at the manufacturers asking price. We have been campaigning together with thousands of others for access but we’re still waiting after 3 & 1/2 years and negotiations are stalling again while people like Luis get more and more poorly. 

Thankfully, we have recently found out that there are generic versions of Orkambi and have set up a Buyers club to privately purchase the medicine from overseas. It will cost £23,000 per year to treat Luis with Lucaftor. I can't afford it all on my own, so any help that anyone can give will be hugely appreciated. Tree of Hope are helping us and other families involved in this situation by assisting with fund raising.

You can find out more about the Buyers Club here: www.cfbuyersclub.org  and https://www.bbc.co.uk/news/health-48357762 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Request Removal

Request a callback

Fields marked with an * are required

Fields marked with an * are required