Our 4 year old son, Liam, was born 12 weeks premature at 28 weeks. Within the first two weeks of his life, Liam suffered a bleed on his brain and a double pneumothorax. He was given life-saving treatment by his doctors and nurses and we were able to bring him home in May 2009. At first, we were just so happy and grateful that Liam had survived his premature birth that we didn't worry too much about developmental milestones....we simply enjoyed our precious time together as a family. However, when Liam was around 8 months old, it became clear to us that Liam was not reaching any of his physical developmental milestones. At 15 months, an MRI scan revealed, and confirmed to us, that Liam had Cerebral Palsy. Liam's diagnosis signalled the beginning of a new, and initially terrifying, journey for us as parents. We were initially told by doctors that Liam may never walk or be able to sit unaided, and that he would need life-long therapy. After the initial shock and fear subsided, we became absolutely determined to give Liam the very best chance to walk and to live as independent and as happy a life as possible. Liam's journey so far has involved intense physiotherapy, occupational therapy and strengthening training as well as Selective Dorsal Rhizotomy (SDR) surgery in St Louis, Missouri in 2011. We have also turned our dining room into a gym for Liam's daily therapy and have sourced all the equipment he needs using our own funds. We are, however, beginning to realise that our personal funds are not infinite and very much against our initial plans and intentions....and with lots of encouragement from our friends, family and some very supportive organisations in our local area...we have decided to set up a charity in Liam's name so that he can continue to receive the very best therapies and have the very best chance of walking towards an independent future.
The photo at the top of this page was taken recently when Liam managed to take his first few independent steps using his quad canes.....something we never believed possible after his initial diagnosis. Now we believe anything is possible and we want to make Liam's dreams of walking independently come true.
If you would like to help Liam realise his dream, you can.....
- make a donation on this page
- make a donation for Liam through the Tree of Hope Charity, who are the trustees of Liam's therapy fund. (details to follow)
- take part in the various running/cycling/walking challenges Steven and I are planning to organise (details to follow)
- take part in a cycle/marathon/do a sky dive/climb a mountain.... in Liam's name
- please pass on any ideas you have of any fundraising activities....we are new to this and need your help!! :-)
Thank you all so much for taking the time to visit Liam's page. xx
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