Sophie's Smile

Sophie is the strongest little lady we know, she shows everyone around her the enormous amount of courage, strength and sheer determination she has through her smile.

Sophie Faith along with her twin sister Erica Hope was born 16 weeks early at 24+2 wks gestation. Their early arrival and further complications led to them both being diagnosed with Cerebral Palsy. Sophie being severely affected with significant medical needs.

Sophie currently needs a lot of equipment, vital things that will improve her comfort and taking part in daily tasks. Unfortunately for children with disabilities the equipment needed is often ridiculously priced that needing and actually physically purchasing can seem impossible. We don’t like the term bucket list so Mummy & Daddy have compiled a wish list for Sophie which includes various pieces of equipment necessary to ensure Sophie's comfort and inclusion. Ranging from a specific bath support manufactured in America, to a p-pod, an Acheeva learning station, through to physiotherapy, communication aids and various pieces of equipment to assist with Sophie's daily living. This is not Sophie’s list I might add, I’m sure if you asked Sophie to choose she would happily sacrifice a piece of equipment to Meet Mr Tumble or Elmo! The things Mummy & Daddy have listed are necessary pieces of equipment but these will continue to change as Sophie's needs change and as she grows. We will always need to be replacing equipment and therapy to meet Sophie's needs making her more comfortable and improve her access to things enabling her to join in every aspect of family life without any limitations. 

Sophie was 8mths old when she was diagnosed with Cerebral Palsy. Her full diagnosis being severe mixed dystonic and hypo/hypertonic bilateral cerebral palsy – GMFCS level 5. This basically means Sophie needs around the clock 24/7 care. Although Cerebral Palsy is not a terminal condition the level that Sophie has can be very progressive and life limiting. We’ve been told by many consultants now that Sophie's condition in the end could result in her premature death following respiratory distress. The resuscitation plans do not make that statement any easier to write! Regardless of any prognosis, Sophie is our daughter, she is a sister, a granddaughter, a cousin, a friend and she is ‘Sensational Sophie’ as named by one of her neurologists! 

Sophie has the cheekiest slapstick sense of humour and for the most part Sophie is always smiling but let me be honest the complexity of Sophie's medical needs do have a massive impact.

She has the most empowering zest for life, she never gives up and we will never give up on her which is ultimately the reason for our fundraising. Please, if you can, help us achieve the 'quality of life' our daughter, Sophie needs and deserves. 

To learn more about Sophie and her journey you can find her on facebook via the link below,

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