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My son Joey Jenkins is a fantastic boy who through all his challenges has a smile on his face. Joey has such severe epilepsy he can't walk , sit unaided or communicate verbally . He is peg fed and has a VNS which is a pace maker for the brain to manage his seizures . He has a life threatening condition and has a genetic condition that is so rare it hasn't been found yet but has a mitochondrial issue which is the power to the body. He has started to babble lots and laughs a huge amount since he has had 3 ops to manage his condition. He has had a tough start to his life and I want to make sure he is as comfortable as possible.
After raising money for a Ppod I am now in the position due to the government not recognising joeys needs, when he lives with me to raise money for essential things such as lift maintenance and day to day living costs . His DLA isn’t being shared like it should so I am now looking to raise monies each year to help assist and ensure he can get the best possible care when he lives with me . These costs should be covered but a brick wall has been hit and I now have to explore other options.
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7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.
If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects. If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objects, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.