Seven-year-old Joe has a form of cerebral palsy called spastic diplegia; for him this means his walking, co-ordination and balance are inhibited. On 4 May 2019 Joe underwent selective dorsal rhizotomy (known as 'SDR') at Great Ormond Street Hospital.
This is a pioneering spinal surgery that reduces the spasticity in Joe's legs and creates the opportunity for him to walk with more balance and co-ordination. It also reduces the chances of him developing further orthopaedic problems in later life.
The surgery is just the beginning of Joe's Journey, not the end. For the next few years of his life, Joe needs intensive specialist rehabilitation physiotherapy and expensive equipment like orthotic ankle supports. None of these services are covered by the NHS, so we are raising money for Joe's ongoing treatment to give him the best chance of making a dramatic recovery from SDR.
Joe is a fundraising superstar and has already raised over £4,000 for Great Ormond Street Hospital, to improve the quality of life for other children staying in the hospital. We want to do something for Joe and give him the best chance of his journey ending well.
7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.
If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects. If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objectives, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.