James's Precious Footsteps
Hello my name is James England and I am 3 years old. I was born ten weeks early and spent the first five weeks of my life in intensive care until I was strong enough to come home.
At 15 months of age I was diagnosed with Spastic Diplegia Cerebral Palsy. I have spasticity in both my legs and arms which can be very uncomfortable and restricts my movements. I have difficulties with muscle control, balance and coordination. At 3 years of age I am still unable to sit unaided or walk, however I do bunny hop crawl and can nearly catch my big brother Edward.
Despite his disability, James is a very happy and cheeky boy and takes on all the challenges his condition throws at him - with great determination.
We are seeking help towards James’ private therapies, specialist equipment and SDR surgery in June 2021. This procedure will be carried out at Alder Hey in Liverpool. James is currently on their waitlist until we are able to raise all of the funds we need. Unfortunately we were told that the NHS are unable to fund his surgery due to his gmfcs classification. His gmfcs grade is 4 and the NHS will only fund 1/3 gradings. We have been told by his neurosurgeon Miss Pettorini that James will benefit from having this operation and it will give him a much better quality of life, it will reduce any future pain and help towards his toileting. The money raised will pay for the surgery, aftercare, a prolonged course of physiotherapy and any specialist equipment he might need.
A bit of information on sdr surgery:
Selective dorsal rhizotomy (SDR) surgery is a procedure that treats muscle spasticity caused by abnormal communication among the brain, spinal cord, nerves and muscles which will help James to walk and do things he dreams of doing.
We can’t thank you enough for your kind support and generosity for making a better life for our little boy James xx
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If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects. If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objectives, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.