Jacob Jokiel - SDR Fundraising
Jacob is 9 years old and living in Bury.
Jacob was born in April 2009, delivered by forceps after 27 hours labour. He developed Group B strep which caused sepsis. After a few hours, his heart stopped beating and he was placed on life support. After two days, we were informed that Jacob was also fighting Meningitis.
Jacob has Spastic Diplegia Cerebral Palsy, which resulted in his muscles being very tight and painful, particularly in his legs. Jacob is reliant on help for all his personal needs which are becoming more difficult as he grows. He requires daily physio to help with the stiffness in his muscles and receives Botox injections every few months which provides temporary relief of pain. Jacob cannot get up or stand up by himself, so he needs to be manually transferred and rely on a wheelchair. He wears splints to make sure that his feet are kept in the correct position. Jacob attends a main stream school with one to one help from a special support assistant. Communication is challenging for him as he is still unable to talk.
There is no cure for Cerebral Palsy, but there is life changing surgery called Selective Dorsal Rhizotomy (SDR), which is available in Alder Hey Children’s Hospital in Liverpool.
SDR is the only surgical procedure that will permanently reduce or eliminate the tightness, giving Jacob far better mobility, and greatly increase his independence.
We need to raise £20,000 for the operation as the procedure is not funded by the NHS. Time is running out! as Jacob is already the upper age limit for the operation.
Jacob is a very sociable boy who loves his family and friends. He is also determined to do things by himself like every other child despite his disability.
Please help Jacob in his journey to independence and life without the pain. Donate if you can.
You can also donate by text OCLL71 followed by £5, £10 or more to 70070.
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