Izzy was born in April 2012 with a number of complex medical needs which included an absent corpus callosum (the two sides of her brain are not connected), three holes in her heart, sluggish kidney function and knee contractors which mean she is unable to stand or walk resulting in her being a full time wheelchair user. Izzy is also partially sighted, partially deaf, non verbal and is entirely tube fed.
In November 2015 we finally received a diagnosis which confirmed our worst fears. Izzy had an extremely rare, life limiting condition.
Izzy is now 8 and has made amazing progress. Her cheeky and determined personality shines through in everything she does. She loves music, adores being outside and is happiest when she can experience the freedom being in water allows her. In order to ensure Izzy can continue to access the activities she loves, we need to raise money for specialist equipment which the NHS is unable to provide.
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