Hannah and Sufyaan Ali
We would like to fundraise for a specialist cross trainer to help Hannah get stronger after her spinal surgery. Funds raised will also go towards treatments and equipment for Hannah and Sufyaan who both have Muscular Dystrophy.
Hannah's spine started to curve due to her condition, Muscular Dystrophy and she needed extensive spinal operation to correct this at Great Ormond Street hospital over the Summer, 2016.
Hannah was taking her last steps before her surgery and despite the odds Hannah has been able to stand after her surgery.
Hannah's muscles now need to be exercised evenly and to be helped to grow in strength so that she can walk again. We have trialled a specialist equipment called the Innowalk which had really helped Hannah to strengthen her legs and hips but unfortunately this equipment is not available on the NHS and in January we had to return the equipment.
Other families have successfully fundraised for this equipment and we hope to do the same with your support.
We are incredibly grateful to all the wonderful people who have supported us through a most gruellingly difficult year as we couldn't have done it without them.
We would now like your support in getting this equipment to help Hannah as without it she cannot build up her strength to walk again. Since returning her equipment, Hannah has lost the strength and tone she had developed when using the cross-trainer, so we know this equipment really works for Hannah.
In the long term Hannah would use this equipment everyday to keep her muscles strong and to prevent complications that arise when people are not very mobile such as pressure sores, contractures, muscle wastage and constricted ventilation due to lack of lung expansion as there is no opportunity to do heart-lung exercise.
With treatments on the horizon, it's imperative we keep Hannah's muscles in the best condition possible.
Any support would be received graciously and is the difference between Hannah being able to walk and not being able to walk again.
Thank you for your support.
7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.
If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects. If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objects, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.
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