Correcting baby Katie's severe Brachycephaly and Plagiocephaly (Flat head)
Nic and Dave Metcalfe - Our Granddaughter Katie was born in July 2014. We noticed her head was very flat at the back but we hoped it would correct itself (as it does with most children). However, as the months have gone by we haven't noticed any improvement - despite Mum and Dad researching the condition and following all the advice given.
They have altered her sleeping position, been aware of how much time she spends laying or sitting down and have spent hours giving her 'tummy time'...unfortunately her head has become even more misshapen as she has grown older.
The NHS refuse to acknowledge that when severe, this condition can cause real problems for a child - not just 'cosmetic' as they would have everyone believe! It is for this reason they refuse to treat the disorder, forcing parents to seek help privately.
Scans show Katie is on the severe scale of the spectrum and urgently needs a made to measure corrective helmet - without this corrective helmet her head will remain flat at the back, her ears will remain misaligned, the bulge on the left side of her head and forehead will become more pronounced leaving her with physical problems as she grows older. We can't let this happen, we don't want her to be bullied when she goes to school. She is a gorgeous, happy baby, already showing a sparkling personality and loved by everyone who meets her when she flashes them her beautiful smile.
It is going to be very unpleasant for her to wear the corrective helmet, the time will be built up until she is wearing it for 23 hours a day - all through this summer. Mum and Dad will be making frequent trips to have the helmet altered and refitted, but after many hours of research we are positive that it will correct, maybe not all, but most of the problems within 12 months.
Katie deserves this chance and while we wish we could just pay for the treatment ourselves in full, at this moment in time we are unable to do this. Mum and Dad are just a normal family, working hard to pay their bills and bring their children up the best way possible. They don't have time to save up as the treatment is needed urgently after we all wrongly assumed it would be available on the NHS.
If you feel able to donate then any amount, large or small, will be gratefully received. We will keep you updated throughout the treatment so you can see the difference your donation has made.
Thank you from all Katie's family.
Should we exceed the target amount (or if we do not raise enough funds, or if they cannot be used for any other reason) the funds raised will go to the general funds of Tree of Hope to assist other sick children.
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