Give George Freedom

I started this fundraising page a few years ago now and since then, with the help of friends, family and work colleagues, we've been working towards our target and have already started making plans for works on the house that will give George the freedom to move around safely.

Incredibly, soon after his 8th birthday, George took his first tentative steps and now he's 10 his confidence is growing every day. He's still unsteady and we're finding there are a lot of trip hazards for him so levelling the downstairs will be the first job we plan together with easing access for his wheelchair.

Thank you so much to everyone who has donated or helped our fundraising efforts so far and thanks for reading George's story xx

George is happy little boy that melts the hearts of everyone he meets with his infectious giggle. The first born of twin boys it was obvious early on that George wasn’t developing the same as his twin brother. He was diagnosed with an incredibly rare genetic disorder at six months and is the only person worldwide with his particular chromosome duplication (he has extra bits of chromosomes 2 and 9) so he’s totally unique. 

George has a learning disability and low muscle tone making him similar in development to a two year old. He finally learnt to sit up when he was three and stand when he was six and we’re now working on walking, but it’s slow progress. We have a saying that everything happens in George time, when George is ready and after lots of determination and practice.

He’s also been diagnosed with autism, suffers from seizures due to epilepsy, is registered partially sighted and has a gastrostomy to help him eat and drink but despite this he is always ready to smile and giggle. He's also deficient in growth hormone so he's still the size of a 3 year old and is growing very slowly. This may have an effect on his bone and muscle development so it's likely he'll have to be given growth hormones.

Although George can’t yet move around completely independently or talk he manages to make himself understood most of the time. He tends to spend most of his time lying on the floor playing with his toys. He also has a supportive chair so that he can join in with family activities but it’s very big and heavy and difficult to move around. This means George is restricted in getting around the house. We do our best to make sure he’s included by picking him up and carrying him around but as he gets older and heavier this is getting more and more difficult and doesn’t give him the same freedom as moving around more independently.

We want George to be able to join in with all the everyday little things the rest of the family enjoys so we're currently trying to raise enough money to make the changes George needs to the house to give him more freedom. George also needs a specially adapted car seat to help us get him out and about and funds will also help towards a carer to help provide us with some respite care.

Adaptations we're planning include making the front of the house level access so we don’t have to lift his heavy wheelchair over the doorstep. We also want to make all the rooms downstairs level so that George won’t have to spend most of his time in one room. And installing a wet room with specialist equipment will mean he will still be able to enjoy a bath without us struggling to lift him safely in and out. We also hope to adapt his bedroom for his specialist bed and install storage for all his equipment and medical supplies. 

Converting the house to make it safer and more accessible would make a huge difference to all of us. If we raise enough funds we're planning a specially adapted sensory den too!

We are more than grateful for any donation that is made. You really are helping to give George more freedom to enjoy life, from the bottom of our hearts, thank you!

Should we exceed the target amount, or if they cannot be used for any other reason, the funds raised will go to the general funds of Tree of Hope to assist other sick children.

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