Give Gracie a Voice

Thank you for visiting my fundraising page.

Gracie is our much-loved 15-year-old middle daughter. She has been diagnosed with a rare genetic condition called CFC Syndrome, which is the cause of her learning and physical disabilities. More recently, Gracie has developed very severe epilepsy, which we have been unable to control, resulting in frequent emergency hospital admissions each year.

Over the years, we have tried many therapies to support her development in both learning and movement. We have been incredibly blessed with financial support from friends, family, and supporters, which has allowed us to provide these opportunities. Unfortunately, the severity of her seizures and the many medications she now takes have caused a regression in many of the hard-won skills she had previously achieved.

Our priority now is to help Gracie get well so that she can enjoy her day-to-day life. Alongside the care we receive from the NHS, we do our best to support her with a healthy diet, supplements, and any equipment she needs to make her life more comfortable.

Your financial support enables us to provide these essential things for Gracie. Tree of Hope is a charity that helps parents manage their fundraised money and ensures that every penny is spent solely on Gracie's needs.