Dylan's Story The Legacy

Dylan; our incredibly gorgeous little boy......sadly lost his battle with his undiagnosed genetic condition, diagnosed shortly before he passed CNS HLH  An extremely rare but brutal condition which amazed doctors he even breathed a day on this earth  We we’re lucky enough to have him for over 11 and a half years  but just not long enough  

We miss our beautiful little boy blue so much and life will never ever be the same again without him  

We are now raising money for the last thing we can do for our Dylan. His stone setting 

Sunday 30th August 2023 at Waltham Abbey Cemetery 

No parent should ever feel the pain we feel 

With love,

Dylan’s Mummy, Daddy and big sister Scarlett

Tree of Hope reserves to use these funds for any purpose stated in the parents charter, including but not limited to, medical treatment, surgery and therapies and related travel expenses, medical and exercise equipment, childcare, home adaptations and the cost of vehicles designed for the disabled

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