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Dreams for Daisy

My name is Daisy May and I am six years old.  I was born 12 weeks prematurely and suffered a massive Brain Haemorrhage when I was just 24 hours old.  Which led me to have Quadriplegia Cerebral Palsy, Hydrocephalus, seizures and I am severley delayed in my development. 

I will give you some background as to what happened in my first few months of life. 

I spent most of the first year I was born in and out of hospital, the first four months were in Neonatal Intensive Care Unit as I was so small and my body was not prepared for the world.  Eventually I grew stronger and was allowed home but not for long. 

After seven days with my mummy and daddy I became very poorly, I was rushed to hospital and put on a life support machine and transferred to Kings College Hospital in London. This is where I would spend the next five months of my life, I had contracted Ecoli Meningitis in my head, bowel and blood.  I had to have several operations on my brain to remove the horrible disease that was taking over my whole body, I also had some of my bowel removed and had many blood transfusions and was given lots and lots of medication to help me fight this.

I was very poorly and my Mummy and Daddy were told I had a 5% chance of survival but I kept fighting and fighting with my family by my side I eventually made it, just.  But it would take over me again for the second time! After all this fighting, meningitis decided to take over my body again and I went through the same as I did the first five months of being at Kings College Hospital but again I fought it and won. 

But it came at a cost I developed further brain damage due to the meningitis, I cannot sit, crawl or walk unaided, I am fed via a tube in my stomach, this is where all my medication goes to, I also suffer from four types of seizures but as you can see from my picture I am a very happy little girl, always smiling and would like to try and succeed in anything I can.

But I need some help with that. This is why my Mummy and Daddy have decided to raise funds for me to help provide much needed physiotherapy/hydrotherapy along with searching for new treatments and specialist equipment to give me a better prolonged quality of life.  Unfortunately we do not know how long I have with my mummy, daddy, sisters and brother so hopefully one day there will be a treatment out there that will help me.

I will have very happy days where I can laugh and watch my favourite character Peppa Pig but I also have very dark days where I just need to rest as I am just to exhausted.

I have recently been diagnosed with a cyst on the brain and have recently had brain surgery so things have slowed down for me. My mobility and energy has been effected but I will continue to fight this.  I have a catherter and a rickman reservoir in the cyst to help with the drainage of fluid and may need a second shunt fitted if the pressure builds up to much in my head. I have not been at school for a while and have been having physiotherapy at home and the funds that have been raised so far have allowed me to have this. Thank you

If you were to donate to my page you would be making a big difference to my life and hopefully others along with it.

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