Charlie's dream to walk
Hey to all of Charlie’s supporters as some of u may know selective dorsal rhizotomy has been funded by the nhs and I am very pleased to announce Charlie is having surgery on the 12th September 2018.
All funds raised so far and in the future will now go towards Charlie’s physio and equipment he will need post op.
I would like to say a big thank u to all for your support as this would not be possible without our ur donations both Charlie and I could not appreciate how generous you have all been so again a big thank you.
Hi my name is Charlie, i am 9 years old i was diagnosed at 16 months old with Periventricular Leukomalacia (PVL) which is quadraplegia (cerebral palsy). I recently went to great ormond street hospital where we was told i have diaplegic cerebral palsy and they said i am a great candidate for sdr in england but me and my mummy need to fund my operation as the nhs do not fund this sort of operation yet.
Charlie is a fun loving boy with plenty of determination, which makes him frustrated as he struggle with day to day physical activity's as well as fine motor, hand and eye co-ordination skills, which affects his self-help skills. Charlie has a brother and a sister and asks why he cant walk like them and his friends. Charlie is able to walk with a kaye walker but gets tierd quickly which he finds frustrating as he wants to run around like his friends.
we would like to fundraise £24.000 to send Charlie to Great ormond street hospital for pioneering surgery called selective dorsal rhizotomy (SDR). This will give charlie the chance to live his dream and walk unaided. selective dorsal rhizotomy is an operation that treats muscle spasticity caused by abnormal communication between the brain, spinal cords, nerves and muscles.
Spasticity commonly affects people with cerebral palsy. SDR surgery corrects the spasticity in the muscles by cutting the nerve rootlets in the spinal cords that are sending abnormal signals to the muscles.
Selective Dorsal Rhizotomy has been shown to:
improve walking pattern
improve function and mobility
make it easier to do self-care activities e.g getting dresssed and grooming
You can also txt your donation to CLMT88 £1 -£10 to 70070
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