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A Life for Lewis

Lewis was born in 2002. At just three months of age, he was diagnosed with West Syndrome. He later developed a condition called Lennox Gastaut Syndrome. This is a rare and extremely severe form of epilepsy that causes severe Global Developmental Delay. Lewis can have 100’s of different seizures every day and his condition is resistant to any medication or therapies which have been tried.

Unfortunately, this means that Lewis is severely disabled and is unable to be independent. He requires round the clock care form his parents as he relies on them for personal care needs. Lewis loves multi-sensory environments so, Lewis’ family joined Tree of Hope in 2014 to raise money so that Lewis could get the Sensory Garden that would love and enjoy.

After a year of their hard work, Lewis got his Sensory Garden. An environment filled with lights, colours and sounds that makes him so happy and content.

“We are delighted to announce that Lewis’ wheelchair accessible/sensory garden is now complete. Lewis has already been out in his new garden and absolutely loves the water feature, sensory flowers, sensory lights and mirrors etc.

He looked so happy, relaxed and chilled out in his new garden, which was so incredibly special for us to see.

This new Sensory garden is going to be absolutely amazing for Lewis, and we are going to be able to spend so many happy hours out in the garden with him. This is something which we have never been able to do, as in the past he has been isolated inside the house, as we couldn’t get his wheelchair into our old garden.

Lewis is now going to be able to spend quality time in his garden with his whole family, which is going to be absolutely amazing for us all. This is something which most people take for granted, but for him to be able to access the garden means the absolute world to him and our whole family.

We would like to say a massive thank you to the whole team at the Tree of Hope for allowing us to use your fundraising platform to raise the money for Lewis. And also for all your help, support and advice throughout the whole fundraising period, you have all been amazing. Quite simply without you Lewis’ dream of a wheelchair accessible/sensory garden at home would not have come true. Much love the Herbert’s x

I would really urge families who find themselves in the same position as we do to contact the tree of hope and to start fundraising for what your child needs, as there are still a lot of very kind and generous people out there who want to help.”

Gary, Lewis’ Dad

If we can support you like we have supported Lewis please call us on 01892 535525 today to talk with our families team – Jenny or Georgie.


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