Austin Kearley's Fundraising Page
Thanks for taking the time to visit Austin's JustGiving page.
Most of you are aware that Austin was born with an extremely rare genetic disorder PTEN Harmatoma Tumour Syndrome. This condition means that Austin has, among other things, severe learning difficulties and is unable to speak. His condition means that while other children of his age are playing, making friends and going to school, Austin is having intense therapy in order to learn and accomplish basic daily tasks – abilities that most of us take for granted.
We have been told by the Cleveland Clinic that Austin fits the criteria to be part of a drugs trial for a drug called Everolimus. We are hoping this drug will help Austin to develop, helping him to learn, and ultimately to speak. In order for us to be part of the trial we will need to fly to the USA once a month for 6 - 12 months with a cost of about £1k per month. We are appealing to everyone out there to fundraise for our son so hopefully we can get him the help he needs.
So if you are running a 5k or 10k, walking up Machu Pichu or cycling the London to Brighton - please think of our son and our mission to give him a voice. Please use this Justgiving page for your sponsorship and one day hopefully Austin will be able to say thank you.
We thank you in advance for taking the time to read this appeal.
T&Cs - Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.
Tree of Hope reserves to use these funds for any purpose stated in the parents charter, including but not limited to, medical treatment, surgery and therapies and related travel expenses, medical and exercise equipment, childcare, home adaptations and the cost of vehicles designed for the disabled.