Over the next year we will be holding numerous fundraising events to help us raise money towards Archie's alternative therapy. We are so very grateful that our mate Jacqueline Anderson is kicking off the fundraising year by running in the London Marathon on April 26! We'll be cheering you from Scotland and wishing you an easy race!!
In October 2012 at 4.5 months old our son Archie was diagnosed with Multi-Focal Diffused Cystic Encephalomalacia. A rare neurological disorder with a very poor prognosis. His MRI report showed that his wee head was full of cysts, with over 90% brain damage. There was just no brain there. He was diagnosed with severe spastic quadriplegic cerebral palsy, epilepsy, and cortical vision impairment. All of this is a result of his severe brain injury following an initially undiagnosed neonatal stroke, or possible congenital T.O.R.C.H infection in the third trimester.
Archies' diagnosis is simply that. A diagnosis. We have learned to entertain and humour the medical professionals over the years and their pessimistic outlook. As we figured out pretty quickly that Archies' future was in our hands. We have been learning, educating ourselves and working so hard with Archies alternative therapy...as we believe in him 100%.
Last year we came across a therapy called ABR, which stands for Advanced Biochemical Rehabilitation. We began the training in November and the changes we have seen in Archie is incredible. ABR is a gentle, home based, hands on treatment, performed by parents that does NOT use drugs, surgery, Botox or forceful techniques. It is a unique rehabilitation approach for children and young adults with cerebral palsy that brings predictable recovery of the muscular/ skeletal structure and motor functions.
We learned how important it was and is to build Archies' respiratory system and digestive system before we even begin to get him walking. How can you expect a child to walk in a walker when they can't even hold their head up? ABR starts from basics, it begins with increasing the internal strength and volume of the child with cerebral palsy so significantly that normal motor functions recover spontaneously.
The unfortunate truth is that much of what would revolutionise a disabled child's life is simply beyond what the NHS are willing to provide,
Since Archie began ABR last November, we have attended 2 training sessions and during this time we have seen Archie make some wonderful progress. The cost is significant and again we must turn to fundraising in order to allow Archie this opportunity.
Over the next year we will be holding numerous fundraising events to help reach our goal and to give Archie a fighting chance! We humbly ask for any donations or fundraising assistance you feel you would be able to offer Archie.
Thank you to Tree of Hope and thank you for taking the time to read and for considering supporting Archie!
Smile and love always
Laura, Kevan, Georgie and Archie
Should we exceed the target amount (or if we do not raise enough funds, or if theycannot be used for any other reason) the funds raised will go to the general funds of Tree of Hope to assist other sick children.
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