Step up for Alex
Alex has Cerebral Palsy which affects her whole body but in particular her walking – this was a result of pre-birth complications. Alex also has a twin sister, Izzy, who wants nothing more than to have her sister to be able to enjoy all that she does – Izzy’s dream is that Alex can run, play and join in all she does.
Fundraising began in November 2015 and in January 2016 Alex was able to have her life changing surgery SDR (Selective Dorsal Rhizotomy).
In the 28 months since surgery Alex has spent 35 days in hospital, 2000 hours plugged into Functional Electrical Stimulation, 255 hours in one-to-one physio and over 275 hours in the car to get to these appointments! In between all this, she has completed Foundation, Year One, Year Two and Rainbows, taken up horse riding, continued to learn to swim and tried to be an average seven-year old, just like her twin sister, Izzy.
Alex continues to face her post surgery rehabilitation and intensive post op physio regime with extraordinary determination, energy and lots of smiles and laughter. She is truly beginning to realise that she can be
like Izzy with her “magic legs”.
Despite the gruelling schedule, Alex continues to blossom each day as she pushes herself to her limits. With her body freed from the spasticity in her legs, she now walks confidently with no sticks or frames in her long and short AFO's and most amazingly around the house with AFO's or shoes.
Having had one course of botox injections and casting of her right leg last October we are now awaiting a second course in her left leg with casting and again in her right leg. Alex responded so well to botox that until she is old enough to have foot corrective work around age 9 she will have to continue botox to bring her heels down.
Alex still faces years of non-NHS funded therapy – physio is now once a week with personal training replacing the second physio session. Age 9 she will also need further surgeries to correct the damage that has been done over the years to her hips, ankles and feet and numerous pieces of equipment that will help at each stage and it unclear whether this will be available in time on the NHS.
With the most amazing support and generosity of our family, friends and the local community we have raised just over £64,000 but for Alex to continue her journey to independence, fundraising will continue to reach our target of £70,000.
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Fundraising with Tree of Hope:
7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.
If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects. If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objects, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.
If you have any questions at all please do not hesitate to call the family
support team on 01892 535525.