Adrian Tomasz Wieclawski
I’ve been concerned about Adrian’s health since he was little. I have been searching for answers for many years, and felt that I had to solve this puzzle myself in order to help my baby. I could sense that something wasn’t right and that Adrian was deteriorating, but I could not find any answers. Finally, last year during a visit to a specialist clinic in Ukraine, Adrian was diagnosed with Pandas Syndrome. PANDAS is short for – Paediatric Autoimmune Neuropsychiatric Disorder. His immune system is producing anybody for his own brain, and not only brain.
Initially I was shocked, and didn’t understand if this was treatable and if so, how? Through research, I found out about Immunoglobulin therapy, which is very effective, and the only real hope for my son, but also extremely expensive.
The treatment is not available through the NHS, meaning we would need to cover the entire cost of his treatment. To cover the first stages of treatment, we took out a bank loan along with help from friends and family. It was all worth it, as the effects of the treatment exceeded our expectations…..Adrian was improving, he became much calmer and less aggressive.
At a cost of £40k the first stage of treatment was a lot for us to bring together, but was a very worthwhile investment in my son’s health and future.
In May 2021, during a follow on visit, we were told that unfortunately the fight is still far from over. Although Adrian has shown some very good improvement, his treatment will need to continue, as his condition will only regress if we discontinue now.
The planed cost of the next round of treatment is estimated to be £40k We are still trying to pay off debts incurred to pay for the first stage of treatment, and the finances necessary to continue his treatment is beyond what we are able to put together.
I am asking for help and support so that we can provide the necessary treatment for Adrian to be able to have happy, healthy, normal future.
Please support us and help save Adrian.
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