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£40,000 treatment could turn 10-year-old’s life around

Ten-year-old Adrian Wieclawski from Rustington, Littlehampton, was diagnosed with PANDAS Syndrome last year.

PANDAS (Paediatric Autoimmune Neuropsychiatric Disorder) is a little-known condition which can be caused by a misdirected immune response to a common infection such as strep throat, ear infection or scarlet fever. Adrian’s antibodies are attacking his own brain.

This has led to OCD, aggression and developmental delay – he reads and writes at the approximate level of a five-year-old.

Mum Magdelena Sadowska, 37 and husband Adrian Stanke, 33, are fundraising to cover the cost of specialist immunoglobin therapy in Ukraine. They have already been for six sessions at a cost of approximately £4,000 to £5,000 for each one, and now want to take Adrian for six more.

‘We have already seen a huge improvement,’ said Magdelena. ‘He will chat, play and giggle in a way which he didn’t before. His doctors have said that if we continue the treatment, he may eventually be like any other boy of all age. All I want is the best for him, like any parent.’

The family are still trying to pay off debts incurred over the first round of treatment, and need upwards of £40,000 to cover the next stage. Each month, Adrian will need to spend five days in a row receiving eight-hour-long infusions.

‘In May 2021, during a follow on visit, we were told that unfortunately the fight is still far from over. Although Adrian has shown some very good improvement, his treatment will need to continue, as his condition will only regress if we discontinue now, Magdelena added.

 

‘The planned cost of the next round of treatment is estimated to be £40K  We are still trying to pay off  debts incurred to pay for the first stage of treatment, and the finances necessary to continue his treatment is beyond what we are able to put together.

 

‘I am asking for help and support so that we can provide the necessary treatment for Adrian to be able to have happy, healthy, normal future.’

 

Spiderman fan Adrian will be taking part in the Marvel Find Your Power Superhero Challenge this July. The Find your Power Challenge is a countrywide disability sports event which encourages people to set their own challenges – from 100 metres to 1,000 km or more – and complete them however they want, when they want. The event is usually a mass participation event taking place at Dorney Lake in Windsor, one of the main sites featured in the 2012 London Olympics. However, it is continuing its ‘At Home’ theme for a second year, due to the pandemic.

 

The family is supported by children’s charity Tree of Hope who are also a named charity partner of the Marvel Superhero Series for a third year running, helps families fundraise for children like Nini with healthcare needs and provides charity status to benefit from gift aid, corporate support whilst also providing donor reassurance.

 

To donate to Adrian’s fund, visit https://www.treeofhope.org.uk/adrian-tomasz-wieclawski/

 

For more information, images or to arrange interviews please contact Catherine Cooper on 00 33 5 61 69 57 89, 00 33 6 09 03 55 88 or mail@catherinecooper.net

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