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Donate to Tree of Hope today

Can you support us?

Donate to Tree of Hope today

Olivia Lugani

Tree of Hope is helping to raise funds for Olivia's medical equipment, Koala wheelchair, physical therapies, school IT equipment, second-hand wheelchair accessible vehicle, and home adaptations, which will offer her the best quality of life. We have a long journey ahead and every contribution will make a difference. Your donation will solely benefit Olivia, no one else.

Olivia was clinically diagnosed in 2013 with an extremely rare genetic condition called Goldblatt Syndrome (aka Odontochondrodysplasia), a form of Dwarfism. Doctors around the world have not been able to diagnose her molecularly.  Only 18 other children world-wide have this similar condition.

Olivia is 4yrs old and suffers from muscular and joint pain everyday and cannot walk. In Summer 2017, she will be undergoing craniocervical neck surgery at Great Ormond Street Hospital in London. Due to her condition, Olivia has neck instability in C1/C2 region, therefore she will need to have her skull fused to the base of her neck to ensure there is not a risk of permanent spinal damage. An electric wheelchair will give her the mobility and independence she craves. We are also going to have to adapt the home with several changes, for example, installing a lift and specially-made shower room, and facilities for post-operative, long-term care.

Olivia is a delightful girl who lights up the room. She has many friends who love her dearly. She enjoys playing with her princess dolls, making arts and crafts projects, dancing on the sofa, creating science experiments, building lego towers, and riding her tricycle around the house. 

The disease does not allow Olivia’s muscle strength to develop, therefore she cannot walk. She has private physiotherapy several times a week to work on her gross motor skills and hydrotherapy sessions to ease her pain. As Olivia's condition is so rare, the burden of care must fall on parents to pay for expensive, privately-funded medical equipment, treatment, and adaptations. 

THANK YOU for all of your generous donations to help us raise the necessary funds to privately purchase an electric wheelchair for Olivia. Her Koala Mini by Permobil is now on order for May delivery! Pictures to follow.  

Please Register on Olivia's website to follow her progress
Instagram (@sparkling_tiaras)
Facebook (olivia lugani)

Thank you for your love and support.

The Lugani Family.

GBP Cheques can be sent directly to Tree of Hope for the benefit of OLIVIA LUGANI. We will list your donation as an 'offline donation'. Postal address: Salford House, Salford Terrace, 19-21 Quarry Hill Road, Tonbridge TN9 2RN

GBP Bank transfers:
Account Name: Tree of Hope
Bank: HSBC
Sort code: 40 10 14
Account number: 31498045
Reference ‘Olivia Lugani’

Bank Transfers for International Donors:
Tree of Hope is able to accept donations from any country, but if you prefer to send via bank transfer
ACCOUNT NUMBER: 401014 31498045
ADDRESS: 43a Little Mount Sion, Tunbridge Wells Kent, TN1 1YP
IBAN: GB27MIDL40101431498045
BANK: HSBC Bank plc
BANK ADDRESS: 2 Devonshire Road, Bexhill-on-Sea, East Sussex, TN40 1AT

NB: Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to Olivia

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