Can you support us?

Donate to Tree of Hope today

Can you support us?

Donate to Tree of Hope today

Olivia Lugani

Tree of Hope is helping to raise funds for Olivia's medical equipment, Koala wheelchair, physical therapies, school IT equipment, a second-hand wheelchair accessible vehicle, and home adaptations, which will offer her the best quality of life. We have a long journey ahead and every contribution will make a difference. Your donation will solely benefit Olivia, no one else.

Olivia was clinically diagnosed in 2013 with an extremely rare genetic condition called Goldblatt Syndrome (aka Odontochondrodysplasia), a form of Dwarfism. Doctors around the world have not been able to diagnose her molecularly.  Only 18 other children world-wide have this similar condition.

Olivia is 4yrs old and suffers from muscular and joint pain and cannot walk. After further investigations by US and French doctors, Olivia will be undergoing craniocervical neck surgery. Due to her condition, Olivia has neck instability in C1/C2 region, therefore she will need to have her skull fused to the base of her neck to ensure there is no risk of permanent spinal damage. The electric wheelchair gives her the mobility and independence she craves. 

We are seeking to adapt the home to allow Olivia to access in her wheelchair and have more independence in the bathroom. For example, installing a lift and specially-made shower room, and have facilities for post-operative, long-term care.

Olivia is a delightful girl who lights up the room. She has many friends who love her dearly. She enjoys playing with her princess dolls, making arts and crafts projects, dancing on the sofa, creating science experiments, building lego towers, and riding her tricycle around the house.

The disease does not allow Olivia’s muscle strength to develop, therefore she cannot walk. She has private physiotherapy several times a week to work on her gross motor skills and hydrotherapy sessions to ease her pain. As Olivia's condition is so rare, the burden of care must fall on parents to pay for expensive, privately-funded, bespoke-made medical equipment, treatment, and home and car adaptations.
 
THANK YOU for all of your generous donations to help us raise the necessary funds to privately purchase Olivia's electric wheelchair. Her Koala Mini by Permobil was received. Pictures are soon to follow!
 
Please REGISTER on Olivia's website www.olivialugani.com to follow her progress and 'befriend' her on Instagram (@sparkling_tiaras) and Facebook (olivia lugani).

Thank you for your continued love and support on this journey of life.

Warm regards,
The Lugani Family

GBP Cheques can be sent directly to Tree of Hope for the benefit of OLIVIA LUGANI. We will list your donation as an 'offline donation'. Postal address: Salford House, Salford Terrace, 19-21 Quarry Hill Road, Tonbridge TN9 2RN

GBP Bank transfers:
Account Name: Tree of Hope
Bank: HSBC
Sort code: 40 10 14
Account number: 31498045
Reference ‘Olivia Lugani’

Bank Transfers for International Donors:
Tree of Hope is able to accept donations from any country, but if you prefer to send via bank transfer
ACCOUNT NUMBER: 401014 31498045
ACCOUNT HOLDER: Tree Of Hope
ADDRESS: 43a Little Mount Sion, Tunbridge Wells Kent, TN1 1YP
IBAN: GB27MIDL40101431498045
SWIFT/BIC CODE: MIDLGB22
BANK: HSBC Bank plc
BANK ADDRESS: 2 Devonshire Road, Bexhill-on-Sea, East Sussex, TN40 1AT

NB: Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to Olivia

Request Removal

Request a callback

Fields marked with an * are required

Fields marked with an * are required