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Lewis' Fund- HelpLewis to Talk

Thanks for taking the time to visit my JustGiving page.

My family are raising funds for therapy services and equipment to help me to be able to communicate my wants and needs and to talk to my friends.

I am 10 years old and was born with a rare genetic condition which affects my whole body. I can't move independently but I can learn to communicate.  I understand everything you say to me and have always let people know how I feel with a smile, a frown or by looking at objects and pictures.  I now use an eye-gaze communication aid to talk. I am trying to learn to express myself clearly and to find the words I need to chat, as I have not had access to language before.

I need to be well supported in a range of equipment in the day to keep me comfortable and to enable me to use my communication aid. Regular physiotherapy helps to keep me comfortable as my muscles can be very tight and stop me from sleeping at night.

I love playing with my friends and brother. I enjoy board games, playing with my avenger characters, baking and all sorts of other activities. Some of the funds raised will help to pay for a speech therapist so that I can talk to my friends and family while we play.


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