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Jacob Jokiel - SDR Fundraising

OFFLINE DONATIONS AND FUNDRAISERS SPONSORSHIP DONATIONS TOTAL ON www.treeofhope.org.uk/jacob-jokiel

Jacob is 8 years old and living in Bury.

Jacob has been offered a lifechanging operation called Selective Dorsal Rhizotomy (SDR) at Alder Hey Children’s Hospital in Liverpool. We desperately need to raise £20,000 as the procedure is not funded by the NHS.

Selective Dorsal Rhizotomy will give Jacob far better mobility and greatly increase his mobility. SDR is the only surgical procedure that will permanently reduce or eliminate the tightness. 

Time is running out! as Jacob is already the upper age limit for the operation.

Jacob was diagnosed with Spastic Diplegia Cerebral Palsy at the age of 20 months old, which resulted in his muscles being very tight and painful, particularly in his legs. Jacob was born in April 2009, delivered by forceps after 27 hours of labour. He was born healthy however after 8 hours he developed Group B strep which caused sepsis. After a few hours, his heart stopped beating and he was placed on life support. After two days, we were informed that Jacob was also fighting Meningitis.

Jacob needs daily physiotherapy alongside a lot of encouragement. Supporting him in the daily activities such as dressing, washing or going to the toilet are becoming incredibly difficult for us all. Jacob still doesn't speak so communicating can be challenging. He cannot get up or stand up by himself so he needs to be manually transferred and rely on a wheelchair. Since being diagnosed with Cerebral Palsy, he has had frequent Botox injections administered into his leg muscles to ease the stiffness. He wears splints to make sure that his feet are kept in the correct position, however, he still has problems as his legs cross over when he tries to stand and walk. Jacob is currently using an electric wheelchair at school and self propelling wheelchair at home and outdoors.

Jacob is a very sociable boy who loves his family and friends. He is also determined to do things by himself like every other child despite his disability.

Please help Jacob in his journey to independence and life without the pain. Donate if you can.

You can also donate by text OCLL71 followed by £5, £10 or more to 70070.


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