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Jacob Jokiel - SDR Fundraising

Jacob is 8 years old, living in Bury with his parents and younger sister Natalia.

He was diagnosed with Spastic Diplegia Cerebral Palsy at the age of 20 months old, which resulted in his muscles being very tight, particularly in his legs. Jacob was born in April 2009, delivered by forceps after 27 hours of labour. He was born healthy however after 8 hours he developed Group B strep which caused sepsis. After a few hours, his heart stopped beating and he was placed on life support. After two days, we were informed that Jacob was also fighting Meningitis.

Jacob now attends a normal primary school, where he has a Special Needs Assistant to help him overcome his educational and physical difficulties. Jacob still doesn't speak so communicating can be challenging.

Jacob needs daily physiotherapy alongside a lot of encouragement and support. Supporting him in the daily activities such as dressing, washing or going to the toilet are becoming incredibly difficult for us all. Jacob cannot get up or stand up by himself so he needs to be manually transferred and rely on a wheelchair. Since being diagnosed with Cerebral Palsy, he has had frequent Botox injections administered into his leg muscles to ease the stiffness. That treatment can be repeated every 6 months however the results only remain visible for about 2 months - after that, his legs become stiff again. He wears splints to make sure that his feet are kept in the correct position, however, he still has problems as his legs cross over when he tries to stand and walk. Jacob is currently using an electric wheelchair at school and self propelling wheelchair at home and outdoors. 

Jacob has been offered a life changing operation - Selective Dorsal Rhizotomy (SDR) which is available in Alder Hey Children's Hospital, Liverpool. This operation would give Jacob a chance to live his life to the fullest without the pain and discomfort he has had to endure. We need to raise £20000 for the operation and following treatment as the SDR procedure is not funded by the NHS. 

Jacob is a very sociable boy who loves his family and friends. He is also determined to do things by himself like every other child despite his disability.

Please help Jacob in his journey to independence and life without the pain.  Donate if you can.

 Thank you for your support

You can also donate by text OCLL71 followed by £1, £2, £3, £4, £5 or £10 to 70070

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