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Isabella's fund

Thanks for taking the time to visit my JustGiving page.

We are raising money for the beautiful Isabella. Isabella is ten years old and suffers from a rare chromosome disorder which has left her with a number of medical difficulties. Isabella is extremely delayed with all aspects of her development and her family are yet to see her crawl take her first step or say her first word. Despite all her problems you can't help but fall in love with her and she has already touched so many lives.

Isabella didn't have the easiest of starts in life and was rushed to hospital at six weeks old as she wouldn't feed and was diagnosed with two holes in her heart, although  it was initially believed Isabella would need surgery so far we have managed to avoid this. However she is still unable to feed or take anything orally so is fed by gastrostomy.

Just a few weeks after being released from hospital Isabella was rushed into hospital again, this time doctors diagnosed her with epilepsy. the next few years became some what of a blur with the family and Isabella spending most of her life in hospital. Due to Isabella being so weak and not developing normally a simple cough or cold became critical for her and would quickly develop into pneumonia. As well as this her epilepsy was difficult to manage and get under control and she was later very ill and was diagnosed with meningitis.  Isabella has since also been registered as blind and suffers from problems with her  bowels as reflux.

Over the years the family and their friends have raised money so that Isabella could take part in intensive physiotherapy programmes, as a result Isabella has become much stronger and can now sit unaided on the floor for periods of time on her own. She can also roll over and play with basic toys like rattles, all of which has given her a greater quality of life as well as giving us all hope for what she may be able to achieve in the future.

The greatest gift we have however been given is that Isabella is now a very happy girl who smiles and giggles something that as a family we waited years to experience.

Isabella has been accepted on a intensive therapy programme in Slovakia at the world renowned Adeli centre, she is currently due to start treatment on the 22nd June this year and as such we are trying to raise the £5000 needed for the trip, however we are trying to raise enough money to cover two courses of therapy a year over the next few years.We are confident that the centre will help Isabella have the best quality of life possible and that she will achieve everything she should. Our dream is that the therapy will one day help Isabella totake her first step it's also important to note that Isabella's health has been improving alongside the increased strength from these programmes. Some of this is due to the fact that she now has the strength to cough and clear her chest but also because she is more mobile so infections no longer just sit on her chest and she has the strength t fight infections easier. 

Despite the huge progress she has made we still have a long way to go,  we are all committed to giving Isabella the best possible life and want to be able to provide Isabella wth as much therapy as possible over the next few years as the improvements start to decrease once children become teenagers.

Should anything happen which would mean the money could no longer be used for Isabella's benefit then any donations will be given to tree of hope so that they can help other children in need

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