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Donate to Tree of Hope today so that we can continue to help children

My name is Frankie from Morden in Surrey and I’m 2 years old. When I was 6 weeks old I was diagnosed with a life limiting condition called infertile osteopetrosis. It is a rare genetic condition and I am currently the only known child in the UK with this condition.

This has caused my bones to become thickened. I have regular blood transfusions, seizers on a daily basis, a tracheostomy, restrictive lung disease, fractures, hearing loss and vision problems. I’m also dependent on oxygen.

I cannot sit up or walk. I also have severe developmental delay. I am medicated on a daily basis, via my NG tube. I have nebulisers, physiotherapy, regular hospital appointments and appointments at home.

I require around the clock care and both my parents are trained in all my special needs. I also have to have nurses to look after me at night time as I can’t be left on my own.

So I’m asking for everyone’s help to raise funds for Tree of Hope to help me.
This is for all my special equipment I so desperately need which will help me on a daily basis, making me more comfortable and providing mewith a better quality of life.

Support Frankie

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