Oakleys Journey

Oakley is 4 years old and has a rare genetic disorder as well as dyskinetic cerebral palsy. 

Because of this Oakley has very complex medical and physical needs. Oakley has spent many months in and out of hospitals. Oakley has 24 hour tube feeds into his jejunum, regular deep suctioning, nebulisers, oxygen, medications and constant medical support. 

Oakley has a team of nurses who help him inside and out of the home. Oakley is also under the local children’s hospice. 

As Oakley’s condition is so rare we don’t have a prognosis for him and his future. Therefore we are fundraising for viral therapies and equipment for him. None of which is available on the NHS. Oakley has attended a few intensive therapy courses to date and has made outstanding progress. He is so determined and puts his all into the therapy he does. He is an absolute inspiration and all the therapy will help him live the most independent comfortable life he can. 

Thank you for supporting us on this journey to give Oakley the best chances xx 

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Total Raised

£665.00

of

£30,000

Fundraise for this child

Latest donations

£25 from Rosie Cross

“Keep doing what you do - you’re an inspiration to us all xxx”

£100 from Anonymous

£20 from Anonymous

“Keep going Oaks xx”

Our Impact

With over 30 years’ experience, we have helped thousands of families and have grown to meet increasing demand. Read our latest impact report to be inspired and find out more about our journey.

2,008

Children helped

£1.2 million

Raised in the last year